| The Boy Whose Skin Fell Off | |
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Entry Number:
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521-PTF-2005 |
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Description:
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A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full. |
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Country:
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UK |
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Length:
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- |
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Contact Info:
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Leonie
Davison ldavison@channel4.co.uk |
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